I didn't want this to get lost in the last post, so I'm calling it out separately. A friend of mine is starting an organization called Gabrielle's Gift, inspired by the daughter of a friend of ours. Our friend's daughter, Gabrielle, has been diagnosed with Niemann-Pick Type C Disease.
NP-C is a genetic, pediatric, neurodegenerative disorder. It is responsible for the build-up of cholesterol in cells, resulting in eventual damage to the nervous system. This metabolic disorder leads to a series of neurological problems that are ultimately fatal.
Yuta and I have offered to help out with a website - Gabrielle's Gift. Right now the web pages are just a simple blog. As things progress, we may move to something more robust.
Check out the site - it's still under development. Some links aren't working. Some content is missing. Eventually we'll be selling bracelets to raise money to support Gabrielle's family and fund research for Niemann-Pick. Janet is working on getting the non-profit status, and we'll need that before bracelets can be sold. Stay tuned for details.